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14 year old daughter and undiagnosed GI pain
Hello, my 14 yr old daughter has had a severe pain in her right side for 3 years. She has nausea and vomiting everyday. The pain is sometimes so bad she can not go to school. We have been to 3 hospitals, she has had 2 endoscopes,1 colonoscopy and it seems like a million other tests. They still have not found anything to contribute to her pain. We are currently seeing a pedo GI, a pedo neurologist and a pedo psychologist. We have tried all the GI meds and she is currently on 90 mg of cymbalta. There has been zero change. We just started acupuncture to see if that would help with some of the pain, too early to tell. I worry about her mental state as she misses school and her friends, but I don’t know where else to turn to . Does anyone have any ideas or know anyone who may be having the same symptoms? Please help!! Thank you.
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Update: mri done on stomach tests normal. Going to try to get a brain mri done now . Pain is the same, actually increased. Reduced cymbalta -she was getting very dark and depressive. Doctors still have no answers. I know someone had brought up gyn issues. Gyn will not due exam due to her age?! So she continues to struggle everyday missing out on a normal teenager daily life . Any ideas?
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1 ReactionI am so sorry to hear about your daughter. I still think she can have endometriosis bc it does not show on a test. The only way they would know is through a Laporoscopy. Does she have painful periods? If she does then I would think maybe endo. Check out the site of EndometriosisTeam & read the stories from young girls with this problem & maybe you will find some answers. I wish you & your daughter the best.
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2 ReactionsAny female who is old enough to have her periods is old enough to need an ob/gyn. The ob/gyn who won't see her due to her age should not be considered as a doctor for her. Drop him! He doesn't want to help.
When I was having problems with what turned out to be endometriosis, medical doctors couldn't seem to find anything wrong, but my primary care, who is an osteopath (medical dr and dr. that uses natural treatments) was the one who found it. She also was the one who discovered the breakthrough last year. I've learned that taking pain meds before the pain hits worked better than trying to fight it until its too late (I'm a fighter). I used OTC pain meds though.
Also have read that prescription pain meds. stop working after awhile, because the body is determined to send the pain signal through, so it makes it stronger so that it overrides the medicine. That means more pain meds. are needed until eventually the pain meds. stop working completely.
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2 ReactionsI don’t believe your reasoning on pain & neither does my doctor
She does not have painful periods. The pain is 24/7.the more research I do it seems that it could be Acnes? Or something with the nerves in her abdominal wall? Feedback??
Has she had any other prior surgeries bc it could be adhesions. I suffer from them & no test will show it. Is her pain all through her body? Maybe she has fibromyalgia bc that is hard to diagnose too.Have you tried a Neurologist bc it could be nerve pain too. I also have that & it can be diagnosed with tests. I'm just throwing things out there for you bc I feel bad for her. I am in constant pain & I know the feeling. Wishing & hoping you get a diagnosis. I truly understand bc I am trying to get a diagnosis with my pain & they are still trying to figure it out.
No other surgeries. We have a pedo neurologist that we have been seeing but he deals more with migraines, he says he can help my daughter but so far no changes. I hope you find relief soon! Thank you for your feedback !
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