← Return to Palliative Care: What is it? How do I get it?

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@debbmol62

Hi, I have a long list of incurable Diseases , CHF COPD, Pulmonary Hypertension a 75% Paralyzed Diaphragm ex ex and they put me on Palliative care and my question is under the CDC new Guidelines of Pain does it apply to PC ?? I am in sooo much pain that i can't do nothing for myself and i have no quality of Life 🙁 can someone please answer this for me and Thank You and i hope everyone has a Great Day.

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Replies to "Hi, I have a long list of incurable Diseases , CHF COPD, Pulmonary Hypertension a 75%..."

Hi @debbmol62 I am sorry to read of your many health issues. That must be a tough road you are on for sure.

Due to my wife's brain cancer, for years she was on palliative care, prior to her entering hospice care. I know that a portion of her palliative care was always pain-management oriented. I know in her situation they didn't want her in unnecessary pain and I would guess that is how all physicians feel.

Have you discussed pain management with your doctor?

Strength, courage, and peace

Hi @debbmol62, I add my welcome to you. You'll notice that I moved your message about palliative care (PC) to an existing discussion in the Lung Health group. If you click VIEW & REPLY, you can read all the past posts in the discussion that include great information about palliative care.

You ask specifically about pain. Managing pain is a big part of palliative care. Palliative care providers have extensive training and experience in pain management. In fact, palliative care is often referred to as "comfort care" because a main goal is to relieve pain and suffering and bring comfort. I'm really glad that you have been offered palliative care.

Here is an article about pain management and palliative care that may interest you.
- Pain (Virtual Hospice) http://www.virtualhospice.ca/en_US/Main+Site+Navigation/Home/Topics/Topics/Symptoms+_+Health+Concerns/Pain.aspx

What specifically would you like to know about the CDC Guidelines for Pain Management and palliative care?

@debbmol62- It sounds like you have had a very bad time and I don't blame you. I can certainly hear the frustration in your tone.. Have you had any chest operations that would paralyze your diaphragm? Do you know what the cause is? It is my understanding, because I am on palliative care too, that a big part of palliative care is comfort and pain control. Palliative care is taking care of all of you, not just when you are at the end of your life. Your quality of life is so important. Do you talk to your doctors about this?