Connect
← Return to Palliative Care: What is it? How do I get it?
Discussion
Palliative Care: What is it? How do I get it?
Cancer: Managing Symptoms | Last Active: Dec 29, 2023 | Replies (44)Comment receiving replies
@ seaspray Hope the hurricane leaves you alone. We never lost power here in Ormond Beach.....flickered a few times. Mayo does now have clinical trials at least in the triple negative breast cancer area. I also went to Moffitt for a clinical trial for the breast cancer, which I also flunked out of. They had a trial of the same drug at Mayo but it didn’t start as soon as Moffitt's did and my oncologist was afraid I wouldn’t qualify at Mayo time wise as they didn’t have a start date yet and there was a time limit on how long it could be after your chemo ended. Now that it's back in my lungs, there is another trial at Mayo that I may qualify for depending on my Foundation One and PD-L1 test results.
Replies to "@ seaspray Hope the hurricane leaves you alone. We never lost power here in Ormond Beach.....flickered..."
Connect
@cwm1 - So far the hurricane has been uneventful...torrential rains and wind gusts but thankfully no flooding as of now, which is high tide. Yes, Mayo does have quite a few trials going on as my oncologist is leading the lung one. That is why I no longer get to see her but once every 3 months. I was offered to try for that when I showed progression back in April but I believe it was a chemo/immunotherapy combo which I do not want to do until I exhaust all other options. Had Gamma Knife radiation end of May so the brain lesions are gone. Just watching the new adrenal gland lesion and hilar node as well as a new one in my thyroid gland. I may decide to radiate those as well although my oncologist does not think I should at this time as I have no pain with them.