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DiscussionPalliative Care: What is it? How do I get it?
Cancer: Managing Symptoms | Last Active: Dec 29, 2023 | Replies (44)Comment receiving replies
Replies to "@cindylb- I also found the lack of emotional support very disappointing. But my husband askekd me,..."
Thank you for sharing your experiences with palliative care! I was diagnosed with acute myeloid leukemia 6,5 years ago. I had a lot of chemo, stem cell transplant and was in and out of the hospital for a very long time. I wish I knew about palliative care at that time - I would have really benefited from it.
We had a social worker on our floor when I had my transplant, but I felt like I could have used a lot more support at that time. My hematologist oncologists were totally focusing on “fixing” me and they did. I was also focusing on surviving and beating my cancer. All other aspects of recovery were largely unaddressed. I have a strong faith in God, so prayer and meditation helped greatly. Hoping not to need it in the near future, but I am prepared to utilize it next time.