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jl1 (@jl1)

Waiting on diagnosis

Brain & Nervous System | Last Active: Nov 3, 2020 | Replies (30)

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@jl1

I had to have more blood work. I have an appointment on 9/23 with my neurologist. Her nurse called me yesterday to send me for bloodwork before my appointment with her. She said this bloodwork needed to be done before I could start treatment which is rituximab. Is it normal to start treatment without a diagnosis? How can they know that it is the correct treatment?

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Replies to "I had to have more blood work. I have an appointment on 9/23 with my neurologist...."

@jl1. I don’t know whether they do/can treat with rituxan before a formal diagnosis. Usually, the first treatment is IVsteroids and then oral steroids. Rituxan is a monoclonal antibody/chemotherapy drug. Have you looked into a 2nd opinion? Have you seen the MRI and discussed it with the doctor? You might try getting on Google scholar and look for CLIPPERS and see what you think or what questions you might want to ask. Or maybe go to a university hospital. Wish you best of luck