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Hi, I got almost the same answer from my oncologist that you did. I am on Keytruda for very advanced uterine cancer, and there is not much data on my cancer and Keytruda. I did chemo/radiation first, but on my 2nd scan my cancer had come back. Chemo and radiation were no longer an option, so they recommended Keytruda as a good match for my tumor, and it did help some. I was told 2 years was the longest they could keep me on Keytruda, and I am on my 11th round. I get it every three weeks. I knew going in this was not a cure, just a life prolonging measure. I am now facing having to stop Keytruda, because I feel sick all the time. All those side effects (the 'minor' ones) I experienced. It's at the point I just can't feel like this anymore, especially since I have to keep working. It's scary to think the only treatment left is the one you may have to quit. I have weighed the pros and cons for myself, and am pretty sure my next treatment will be my last. Each day for me is a new beginning, and only you can pick the road that is right for you. Many blessings, and take care of yourself.
Replies to "Hi, I got almost the same answer from my oncologist that you did. I am on..."
My bf is also on Keytruda. It will be one year sept. He neck and throat cancer Squamish cell carcinoma hpv16. He out with surgery followed by 6 weeks of cisplatin chemo and radiation. Was given a 98% cure rate. 3 month later the pet scan. And it had moved to lymph node on windpipe. He start Keytruda last sept.
He’s not doing well, and has all the side effects. He’s had diarrhea for at least 4 months, fig brain, drops things, balance is so bad that he has to sit to talk to you because he has to focus just to stand, he’s lost over 40lbs, shortness of breath, headaches, feels sick, stomach hurts, voice changed, etc.
Most frustrating for him is he can no longer do the things he could before, he says this is not him.
He just had a pet scan and something lit up on his neck again, however they ruled it out as cancer(but will look at it again in 3 months). Of course this is exactly what happen in his lung too. Shoes up and then it will be dark cause they Keytruda is going it’s job, blocking the cancer.
So he thinks he’s in remission. To me I would like these doctor to tell him. That’s cancer trying to make a comeback, that the Keytruda is doing it’s job.
Truth helps people make good decisions for themselves with what is going on with their bodies. He is not getting better. The side effects are I think worse than the cancer. At this point he also has stated he wants to stop the Keytruda.
So he is taking some supplements. He got the info from Cliff High who has had cancer and is show he no longer has cancer. C60 is one of them. He told my bf to get off the cancer drugs and take these supplements. Of your getting off Keytruda, you should at least look up Cliff High, start that program. You got nothing to lode and everything to gain.
I wish you God’s Love and strength. He’s got you.
And honesty what I have watched with my bf, I will never take any type of chemo, Keytruda, etc. I’ll definitely take supplements etc.
Also look up TheRootBrand. Com. I watched a video on the doc scientist that developed it. All natural and gets metals out and good things in your body.
I’m actually going to order it today.
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@karion182004- Welcome to Mayo Clinic Connect. I'm sorry that you have come to Connect with this extremely difficult decision. You must feel devastated. Are there no medicines that can relieve your symptoms? Has the doctor told you what you can expect after you have to stop Keytruda?