← Return to PSA numbers: Questions about new treatments

Discussion

PSA numbers: Questions about new treatments

Prostate Cancer | Last Active: Apr 1, 2020 | Replies (45)

Comment receiving replies
@waynen

Hi Dave, you are where I was a year ago. I was looking for the best treatment with the least amount of side effects. My Urologist gave me a book by Dr Patrick Walsh from John Hopkins that went through all of the treatment options. Walsh wasn't too keen on targeted Ablation because of the chance of missing cancer cells in the prostrate. He felt the Ablation of the entire prostrate had serious effects on the urethra and rectum. He was speaking from several years ago and the procedure may be better now.
I chose the proton beam therapy, because the men I talked to had few side effects, except irritation of the urethra during treatment. However, my Gleason score was 8, and
my radiation oncologist said by adding hormone therapy to the radiation increased my changes of survival by 20 per cent. I've talked to several men who had the proton beam therapy without hormone therapy and they resumed normal activity after treatment. There is a group that formed out of proton beam treatment at Loma Linda Med Center called the Brotherhood of the Balloon. They have a web site you can access for more information.
You actually have better diagnostics then I had and a radiation oncologist can tell you what would be your treatment option. You may have gone down this road already.
Hormone therapy shrinks the prostrate and can kill cancer cells that may have gotten in your blood stream. I just saw a study where they found cancer cells in blood of 30 of 37 men who had a prostatectomy. Their Gleason score was 8-10. My concern is killing all cells, even if I have to live with Lupron side effects for 18 months. I believe that up to 40 per cent of men treated can get recurrent cancer.
The good news is that surgery and radiation treatment result in same survival rates, so it does come down to what you are willing to live with that goes with the treatment. There's a book written by Robert Marckini, You Can Beat Prostrate Cancer, where he used a table of pros and cons for different types of treatments. It might help. His is a little old and may need
updating.
I wish you well. I know how hard this is.

Jump to this post


Replies to "Hi Dave, you are where I was a year ago. I was looking for the best..."

Thanks for the different ideas! I haven't been real keen on radiation so far but there are a lot of guys who do opt for it. Have a friend who had surgery and a while later had some cancer in another area and he just did radiation and hormone therapy together and it worked great and he was surprised at how little side effects he had. Much less than expected. .........The book may need updating as procedures seem to be advancing rapidly these days. .........I've gone to a support group a few times and heard lots of stories but a lot of different approaches taken and people have different medical things going on so hard to pinpoint 1 thing or protocol to take. They have a different medical professional each meeting. After I told my story and about meeting with the different radiation and oncology people and then trying to make a decision about what protocol to follow, trying to decide about something I knew nothing about a few months before and still know very little, this Dr. was rather taken aback that such an important decision isn't helped along more by group interaction with all the medical professionals involved. Basically that we have to troll around and find out whatever we can and then make the decision ourselves when we barely know what is going on.............