Thank you so much for the information. I'm glad your doing well. After reading your information I realized that our symptoms are very similar. I have noticed some loss of muscle and I do get some pretty bad headaches. I also feel like I don't know how to walk. I have not told my Dr about my muscles because I really did not realized it until I read your note. Thank you so much. I'm going to call Mayo ASAP. I hope they take my insurance. Best wishes.