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Tinnitus and the "Big Three"

MAC & Bronchiectasis | Last Active: Sep 13, 2019 | Replies (4)

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@kathyhg

I see that hearing loss can be caused by rifampin (“less common” side effect). I’ll see what ENT says and go from there.
It’s very distressing. And the ringing in my ears is as well!

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Replies to "I see that hearing loss can be caused by rifampin (“less common” side effect). I’ll see..."

Hi Kathy @kathyhg Yes I also got tinnitus, soon after starting the Azithromycin -- before I even started on the Rifampin. The Azithromycin (and Amikacin if you ever need to use that) is really the most likely cause.
You need to have a follow up hearing check (audiogram) very soon to see if your hearing has got worse. Tinnitus can be a sign of hearing loss -- but not always.
The tinnitus I got has continued but hasn't really got any worse over time (I've now been on the Big 3 for 9 or 10 months), and my hearing isn't worse than the baseline audiogram done before starting the Big 3 drugs.
Azithromycin is probably the most important drug for treating Mycobacteria, so we need to find acceptance and learn some new things to help us adjust to changes like this. Usually I can now accept it and ignore it. If it's ever bugging me, I put the radio on or play some music to mask it. (I often use a small radio with the sound turned down, like white noise, beside my bed so I have no problem getting to sleep).
And remember, it's possible the tinnitus will be lessened a bit when Azithromycin is stopped after the treatment is finished.
I wish you all the best, Annie