1. < Neuropathy

Stimwave user here: What's been your experience?

Posted by donw @donw200, Aug 20, 2019

Like most of us, I did not want a battery implant so I went with Stimwave scs. Its been permanently placed on my spine about 10 days ago. I do feel a little less pain, but my right foot nerve pain still prevents me from sleeping normal hours, preparing home meals and doing normal tasks. I am disappointed. I was hoping for more relief. My worst pain bursts went from 10 to 9. Plus, I still need pain pills.

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donw | @donw200 | Aug 23, 2019
In reply to @donw200 "I first received a Boston Scientific trial SCS and it worked great! Then I was made..." + (show)
@donw200

I first received a Boston Scientific trial SCS and it worked great! Then I was made aware that the permanent one required that the battery be surgically implanted into the area above my left butt/hip. That bothered me immensely. I then pursued the SCS made by Stimwave
because it did not require battery implant. The battery was part of the user controlled hand-remote controller that helps control the pain.
And it would require only one simple outpatient procedure---so I did that trial too. That 4 day trial was not enough time for me to decide so I went on to get the permanent Stimwave SCS, As of now, I think I made a good choice. Although I personally found the Boston Sci.was superior in stopping my right foot nerve pain, it was much easier to "install". And it works somewhat differently. It also has to be adjusted by trial and error (programmed), after it is permanently put in. I can wear it on my belt----it is discreet looking and batteries need to be swapped every 10 hrs. It uses high-frequency waves to communicate to the spinal "wire-film" within. I think it will work better, but it's only been 9 days.

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correction:
I meant the Stimwave SCS was much easier to install

REPLY
Mentor
Rachel, Volunteer Mentor | @rwinney | Aug 24, 2019
In reply to @donw200 "I first received a Boston Scientific trial SCS and it worked great! Then I was made..." + (show)
@donw200

I first received a Boston Scientific trial SCS and it worked great! Then I was made aware that the permanent one required that the battery be surgically implanted into the area above my left butt/hip. That bothered me immensely. I then pursued the SCS made by Stimwave
because it did not require battery implant. The battery was part of the user controlled hand-remote controller that helps control the pain.
And it would require only one simple outpatient procedure---so I did that trial too. That 4 day trial was not enough time for me to decide so I went on to get the permanent Stimwave SCS, As of now, I think I made a good choice. Although I personally found the Boston Sci.was superior in stopping my right foot nerve pain, it was much easier to "install". And it works somewhat differently. It also has to be adjusted by trial and error (programmed), after it is permanently put in. I can wear it on my belt----it is discreet looking and batteries need to be swapped every 10 hrs. It uses high-frequency waves to communicate to the spinal "wire-film" within. I think it will work better, but it's only been 9 days.

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Keep up the good work and I hope it continues to help you.

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lorirenee1 | @lorirenee1 | Aug 24, 2019
In reply to @helennicola "Hi Lorirenee, I would love to know which CBD oil you are referring to, does it..." + (show)
@helennicola

Hi Lorirenee, I would love to know which CBD oil you are referring to, does it contain THC? I have had no success with non THC CBD oil. Thanks, Helen

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Hi Helen, I buy 2500 mg. of CBD oil, with the legal .03% amount of THC. I find that smaller mg. does not help pain. I get it at CBDistillery.com It is approximately 160.00 or so. This company is third party tested on all their products, and I trust them. Shipping to Illinois is on the slow side, but I do not care. It always gets here. Good luck, and give it a try.... Lori Renee

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helennicola | @helennicola | Aug 24, 2019

Thanks for responding lorirenee, unfortunately THC is not yet legal in NC but we’re going to Ca. in Nov. so I’ll try to get some CBD/THC there. I’m glad it helps you when you need it.

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1 reply
lorirenee1 | @lorirenee1 | Aug 25, 2019
In reply to @donw200 "Stimwave and several other medical device companies make SCS devices (spinal cord stimulater) that requires a..." + (show)
@donw200

Stimwave and several other medical device companies make SCS devices (spinal cord stimulater) that requires a specialist doctor to attach a very thin cord to the spine (an out patient minor medical procedure) and a hand-remote control unit in order for the patient to have more control over their pain. They are also made by Boston Scientific.

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Thanks so much for the information, Don. I am doing some investigating now! I hope your pain becomes much less. Living with constant pain is just too much. Lori

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lorirenee1 | @lorirenee1 | Aug 25, 2019
In reply to @helennicola "Thanks for responding lorirenee, unfortunately THC is not yet legal in NC but we’re going to..." + (show)
@helennicola

Thanks for responding lorirenee, unfortunately THC is not yet legal in NC but we’re going to Ca. in Nov. so I’ll try to get some CBD/THC there. I’m glad it helps you when you need it.

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Helen, I am almost positive that .03% THC IS LEGAL in every state. It is literally a tiny amount, but I like a bit in my CBD. Go to CBDistillery.com, and I bet you can order it without a problem. If you prefer, you can also order 2500 mg. CBD oil, WITHOUT the THC. The CBD oil that they make there, works. That is what is most important. Also, if you buy the 2500 mg., you can do easy adjustments of dose, which is nice. Sometimes I will take a half dropper, sometimes a full one, sometimes a dropper and a half. CBDistillery.com is a leader in the field. They have won awards. Good luck to you. This pain of ours is a bitch!!!! Lori

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donw | @donw200 | Sep 4, 2019

Don Update---It has been about 10 days and not much pain reduction using my Stimwave SCS. Maybe a 10% reduction. I will continue to keep you posted.

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2 replies
lorirenee1 | @lorirenee1 | Sep 4, 2019
In reply to @donw200 "Don Update---It has been about 10 days and not much pain reduction using my Stimwave SCS...." + (show)
@donw200

Don Update---It has been about 10 days and not much pain reduction using my Stimwave SCS. Maybe a 10% reduction. I will continue to keep you posted.

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Sorry to hear this, Don. Maybe in time, it will help? Who knows, but I hope so. Keep us posted, and best of luck. You are brave to try it! Lori Renee

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donw | @donw200 | Sep 4, 2019
In reply to @lisalucier "Hi, @lorirenee1 - I can imagine that having bad pain in your feet and trying so..." + (show)
@lisalucier

Hi, @lorirenee1 - I can imagine that having bad pain in your feet and trying so many things to help you without success must indeed be crazy. I am glad to hear you are finding some measure of relief. Just wanted to point out this FDA warning on kratom, however, so members can be aware https://www.fda.gov/news-events/public-health-focus/fda-and-kratom.

lorirenee - what treatments have you tried that were not fruitful for your pain?

@donw200 - if you could tell a bit more about the wireless spinal cord and peripheral nerve stimulation you went through, as lorirenee requested, that would be great.

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Please watch this short video about Stimwave SCS
https://www.youtube.com/watch?v=WghakX-wJZA

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1 reply
Moderator
Lisa Lucier, Moderator | @lisalucier | Sep 5, 2019
In reply to @donw200 "Don Update---It has been about 10 days and not much pain reduction using my Stimwave SCS...." + (show)
@donw200

Don Update---It has been about 10 days and not much pain reduction using my Stimwave SCS. Maybe a 10% reduction. I will continue to keep you posted.

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Hi, @donw200 - thanks for your update. I think it's beneficial for many here to hear how your treatments are going. How are you feeling about this therapy at this point? Hopeful? Discouraged?

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