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← Return to Anyone have Scleroderma?
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Autoimmune Diseases | Last Active: Dec 15, 2023 | Replies (37)
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hi I have scleroderma and have had symptoms for 12 years. I was officially diagnosed one year ago. My mouth has gotten considerably smaller but not physically noticeable yet from outsiders. I am very anxious about this & wonder if this will get worse with time? I also have raynaud's disease, chronic fatigue, Scleroderma esophagus, dry eyes, dry mouth, depression, anxiety, etc. Any info about the mouth issue or anything else related to Scleroderma is greatly appreciated.
Replies to "hi I have scleroderma and have had symptoms for 12 years. I was officially diagnosed one..."
One more thing,,, i feel the change won't get worse with your mouth. Do the exercises,,and believe me no one notices change but you!! We are our worst critics! Xo
Look into TMJ issues if you are unable to open your mouth wide...
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Hello, you could always try mouth exercises /stretching. It helps a little. Facial massages are also a good tool. Borage oil helps the skin. Gotu kola is also one of my essentials. You could take them orally or topically. I've had scleroderma since I was about 12. Keep your esophagus protected. I wish I would've taken medicine sooner for my reflux. My lungs are terribly damaged now. I feel I could've prevented this if I would've known what I know now. Try to stay positive and exercise. Diet and exercise are so important. May I ask how old you are?