@kp5450121 Hello Karen. So sorry that you are dealing with such serious lung issues. There is nothing worse than not being able to breathe. I saw my mother turn blue many times during her battle with Alpha-1 deficiency. I too was almost a candidate for a lung transplant back in 2013. Fortunately, my case was a matter of clearing out heavy infection from my air sacs. I'd like to try to guide you to to some good help if possible. I do know of a man who received a double lung transplant in Ca. He was turned down by everybody. That was over ten yrs ago, and he is still alive and well today. I will try to contact him and find out where exactly he went. There are a few 'great' lung transplant hospitals I know of. Duke Medical University in S.C, and one in San Francisco. (Will get back to you on that one) I am not saying you need a lung transplant, but at least the medical instituions that do great lung transplants would have great pulmonologists. What part of the country do you live in?