← Return to In shock after MAC diagnosis

Discussion

In shock after MAC diagnosis

MAC & Bronchiectasis | Last Active: Nov 1, 2022 | Replies (136)

Comment receiving replies
@dsilva

I have bronchiectasis for 12 years, and lived normal life. About 1 year Cat Scan and broncoscopia tested + for MAC. 1 pulmonologist from a renowned hospital in New York does not want prescribes medication, which may cause me more harm than good. I am planning a 2nd opinion soon. Where? I think I should be treated for the disease now , and don’t wait to get very ill and begin treatment.

Jump to this post


Replies to "I have bronchiectasis for 12 years, and lived normal life. About 1 year Cat Scan and..."

@dsilva Hi, who do you see in NY? I’ve been seeing Dr. Kamelhar assoc with NYU since 2016. That has been his approach also. I have nodules that come and go, and some shortness of breath, but no other symptoms. I also have bronchiectasis. My regular pulmonary Dr has also agreed about the wait and see approach. I have learned that even if you go on the antibiotics and get rid of it you can still become reinfected and might need to be treated again. I think that’s why they suggest waiting.
Gina K