@kp5450121 Have you checked National Jewish Health in Denver? It appears they treat Bronchiolitis obliterans. Looks like you should be on corticosteroids and immunosuppressive therapies....then transplant. I hope you are getting some sort of treatment now. You might try contacting them...if they will not take you maybe they can direct you somewhere else. They are tops in lung care. Also...please use the @alleycatkate when responding so I will see your response.

@kp5450121 Hello Karen. So sorry that you are dealing with such serious lung issues. There is nothing worse than not being able to breathe. I saw my mother turn blue many times during her battle with Alpha-1 deficiency. I too was almost a candidate for a lung transplant back in 2013. Fortunately, my case was a matter of clearing out heavy infection from my air sacs. I'd like to try to guide you to to some good help if possible. I do know of a man who received a double lung transplant in Ca. He was turned down by everybody. That was over ten yrs ago, and he is still alive and well today. I will try to contact him and find out where exactly he went. There are a few 'great' lung transplant hospitals I know of. Duke Medical University in S.C, and one in San Francisco. (Will get back to you on that one) I am not saying you need a lung transplant, but at least the medical instituions that do great lung transplants would have great pulmonologists. What part of the country do you live in?

@kp5450121 Hi. May I ask why you were denied transplantation at Mayo? I wasn't denied, but put on the back burner, so to speak. They said I was on the cusp of needing one, but got the green light should I go downhill. I am aware of factors that would cause them to say no. One biggy is weight. You cannot be overweight. Old age, and other circumstancial diseases are also factors along with mental health. You have to be of sound mind and have positive attitude because it is a real fight to survive a lung transplant.