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In shock after MAC diagnosis

MAC & Bronchiectasis | Last Active: Nov 1, 2022 | Replies (136)

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@megan123

hi aunt nanny...I too have psedo...did sensitivites as well..I am using Colistin every other month to keep the psedo at bay...I’m not doing a drug in between, because these drugs cipro and levaquin have hard sideceffects...I’m going all also for a second opinion with our head of infectious disease..drs feel that for now this might be a better plan...I have Toby and Cayston as a back up...my drs say your chances r better not to develop s tolerance if u r doing drug every other month with nothing in between..better on your kidneys and liver..will see what second opinion dr says

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Replies to "hi aunt nanny...I too have psedo...did sensitivites as well..I am using Colistin every other month to..."

Jennifer@megan123 Thanks so very much for your post. Would you be so kind as to follow up after your second opinion. Jan

I have heard of most all the antibiotics, but what is Toby? Is it a short for something?

Thanks.

Jennifer --- thank you for the post -- please report back after your second opinion

I just want to mention that I was prescribed 750 mg once/ a day of Levofloxacin. A pharmacist scared me and said he knew many people that can’t take this high dosage, I took it for 10 days with almost no side affects.... I had some trouble sleeping and my one problem shoulder ached a tiny bit sometimes.