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sueinmn --- I read with much interest the fact that toby did not help you. I'm half way through my 5th session of toby and I sometimes think I cough more than I did before I started it. Maybe not, but tremendous coughing and heavy green phlegm It does not seem to be helping me at all. I just did a sputum sample and sure enough -- pseudomonas as usual. I took Levaquin about a year ago --- and clindamycin prior to that. None of those have helped. I hate to be a constant complainer, but was interested in Colistin. I have the list of susceptibility results and they are aztreonam, celepime, cefazidime, ciprofloxacin, imipenem, levofloxacin, and piperacillin/tazoactam. Has anyone on this forum not been helped by toby -- and found any of the above meds to eradicate the pseudomonas. I would love to know what others have found. I need help (I'm with Rochester Mayo's and I've faxed my report to them so hopefully he'll try something else. I know Terri has used toby and another antibiotic on alternate months and I'm wondering if anyone else is on a program like hers. Thanks for all the info I can gather. Jan
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hi aunt nanny...I too have psedo...did sensitivites as well..I am using Colistin every other month to keep the psedo at bay...I’m not doing a drug in between, because these drugs cipro and levaquin have hard sideceffects...I’m going all also for a second opinion with our head of infectious disease..drs feel that for now this might be a better plan...I have Toby and Cayston as a back up...my drs say your chances r better not to develop s tolerance if u r doing drug every other month with nothing in between..better on your kidneys and liver..will see what second opinion dr says
Jan, as you know, the toby and cipro is what did the trick for me. Toby one month and cipro on alternating months.
Hello. I am just finishing my first 28 days of Tobramycin and I feel like I cough more now than before also. Any type of exertion causes me to cough. I plan on getting a second opinion. I have a question for anyone taking Tobramycin thru a nebulizer. Do you do albuterol and sodium chloride thru the nebulizer before taking the Tobramycin? That’s how I was told to take it and to wash and /or change my mouthpiece between. Can anyone else tell me the steps you take? Thanks! Donna
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@auntnanny I was treated with ciprofloxin and it knocked it out .
I rarely cough and have no phlegm, what are the symptoms? It was found in a sputum culture after I had pneumonia .
Jan in Fl.