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In shock after MAC diagnosis

MAC & Bronchiectasis | Last Active: Nov 1, 2022 | Replies (136)

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@sueinmn

Pseudomonas is another bug which invades compromised lungs and can cause pneumonia. May occur alone or in combination with MAC/MAI. It is (generally) easier to treat than MAC/MAI, the course of treatment is usually much shorter, and it (generally) responds to levaquin, doxycycline, and/or inhaled trobamycin. It can also reoccur, and like Terri says, is also often found in yard and garden. Just another one of those things to be aware of if you have bronchiectasis. I wear long sleeves, gloves and an N-95 mask when working in the yard to minimize exposure to both bugs. I can't leave it to my husband, because he also has bronchiectasis, has had pseudomonas (but not MAC) and has really bad allergies. Another commonly-cited source for both bugs is wood mulch (which can also harbor mold spores) so I leave the handling of that to a hired teenager, who also does some of the heavy work in our yard and a lot of the trimming and hauling of brush.

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Replies to "Pseudomonas is another bug which invades compromised lungs and can cause pneumonia. May occur alone or..."

@sueinmn....I also have psedomonas, mine being much more difficult to treat...tobi doesn’t wrk for me, but Colistin does...depending on your sensitivites as well makes a huge difference and how colonized it is...it is s very dangerous bacteria, and can be difficult to treat, as I’m experiencing...tks for the onfo

@sueinmn Hi Sue! Just wanted you to know that I appreciate your spot-on comments. You always provide accurate info. to the newcomers. I have been extremely busy with a building roject and helping a dear friend care for two parents with dementia. I feel good knowing that you are here and catch some 'newbies' that I may not get to right away. My appreciation extends to all of you that pitch in daily and keep our network strong. I got my annual test results back from Mayo today. NEGATIVE for all organisms. That makes three yrs free of infection! Yayyyyy!!