← Return to In shock after MAC diagnosis

Discussion

In shock after MAC diagnosis

MAC & Bronchiectasis | Last Active: Nov 1, 2022 | Replies (136)

Comment receiving replies
@sueinmn

I'm VERY curious about what you hear. MAI cannot be diagnosed by CT as far as I am aware, but someone else may know something I do not. NTM/MAC/MAI is a very slow-growing bacteria related to TB, and is diagnosed through a culture grown out in a specialized lab. The process takes at least 6 weeks, and for proper treatment is followed by exposing the bugs to various combinations of antibiotics to see what will treat your strain. The sample may be procured via a cough, or a bronchoscopy. There are other bugs that can cause the pneumonia as well. I was treated for pseudomonas pneumonia after cultures were taken (that culture only takes 2-3 weeks, and usually a shorter course of treatment - mine was 2 months with Levaquin, then inhaled Tobramycin). Then the second set of cultures came back confirming MAC and I have been on that treatment over a year, first 3 times weekly, now daily. My husband, who also has bronchiectasis, had neither pseudomonas nor MAC, but yet another bacterial pneumonia (I don't remember specifically) and was treated with 4 courses antibiotics (2 different ones at different times.)

Jump to this post


Replies to "I'm VERY curious about what you hear. MAI cannot be diagnosed by CT as far as..."

@sueinmn I was told by a cardiologist friend of the family that MAI has a very specific look on a CT, however a formal diagnosis can not be made via the CT. But I will ask about that.

@sueinmn when I was diagnosed the CT scan said “indicative of MAC/MAI” and I was immediately sent to a pulmonologist who did a bronchoscopy, and the culture from that was sent out. It came back positive, and the rest is history. (Irene5)