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In shock after MAC diagnosis

MAC & Bronchiectasis | Last Active: Nov 1, 2022 | Replies (136)

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@sylvermoon8

Thank you for the additional information. I am scared of taking so many drugs at one time. But then again I was treated some years ago for persistent Lyme disease. I was on 2 antibiotics at a time but they were easy ones really. I wonder do those of you that get the 3 antibiotic treatment take probiotics? My Lyme disease specialist had me on 2 while being treated. I have not had an appointment with my pulmonologist since my last CT and was surprised she wanted a biopsy so quickly. However if it will confirm exactly what I have that is good. After that I will look for a specialist I am not sure how far I will have to travel. I am near Baltimore and Philadelphia, that should help.

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Replies to "Thank you for the additional information. I am scared of taking so many drugs at one..."

First, if you are coughing, can you ask them to try a sputum culture from your cough first? Or at least explain why they want a biopsy instead?
As for the 3 antibiotics, I won't say it's easy, but it can be done. Yes! to the probiotics - I take them every other day.
My biggest problems have been weight loss with lack of appetite and fatigue. If you watch the NJH video on food and nutrition, she gives good tips. Three of my strategies are Carnation Instant Breakfast in my morning coffee (I can't face food first thing in the morning), protein powder in smoothies and sauces, and eating something every 1 -2 hours until 8pm. I grab cheese, 1/2 a high protein shake, some smoothie (I make them by the pitcher), part of a Lara Bar, a piece of fruit...
To manage the side effects of the meds, I take all 3 at bedtime, at least 2 hours after last food and my other evening meds, with just a sip of water. I tried taking one in the morning as recommended, but it made me so sick there is no way I could stay on the regimen, so this is my compromise.

When I was treated for Lyme Disease in 1992 my doctor also told me to take probiotics along with the antibiotics which I was on for a year.