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intermittently testing positive for MAC

MAC & Bronchiectasis | Last Active: Aug 21, 2019 | Replies (7)

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@sueinmn

@128128terry11t So sorry to hear that! I think your portal needs work - the one my clinic uses doesn't release bad results until the doc has seen them, and has a chance to call! That said, I feel for you - I haven't yet had negative results - just one neg & two pos on a couple of samples (my doc alwasy insists on 3.)
But my last CT showed additional pockets of infection, along 2 positive samples, so the ID doc put me on DAILY Big 3 for at least 6 months. Waiting now to see if I converted to negative or if we need to add something. He still says at least 6 months of treatment after 2 consecutive negative tests.
This is such a frustrating infection! Also, take a look at these videos https://www.nationaljewish.org/ntmvideos2016. They may give you some clue about whether this is the same old infection, or a new one.

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Replies to "@128128terry11t So sorry to hear that! I think your portal needs work - the one my..."

@sueinmn Wow!! Thanks a million for posting the video links. I just finished the first one and found it incredibly informative!!
Kate

Thank you for responding. Much appreciated. I was referring to what appears to be the first fast look at a sputum sample that I sent to National Jewish. I can't believe that they would send this out on their portal without a phone call explaining to any patient what the preliminary results mean. They have never had sputum sample results on the portal before ... maybe they have changed their minds on releasing it as they release other medical test information. ??? So true, this is a frustrating infection any way you look at it. Wishing everyone better health.