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High grade Glioma - What questions should I ask?
Brain Tumor | Last Active: May 2 7:18pm | Replies (58)Comment receiving replies
Hello, I have an inoperable GBM and I am treated in Intra-Arterial chemotherapy with Carboplatin (for a year) and for 3 months, a mixture of Carboplatin and Methotrexate. I very well supported the chemos with the (nice) carboplatin but I badly support the chemos since we added Methotrexate. Are any of you receiving Methotrexate? What were your side effects (nausea, itching, hair loss, shortness of breath ...)? Do you have solutions, supplements to help get through this? Thanks for sharing
Replies to "Hello, I have an inoperable GBM and I am treated in Intra-Arterial chemotherapy with Carboplatin (for..."
Hello @marcyprof
I am so sorry you’re having to deal with all this. I receive a different chemotherapy drug for my autoimmune disease. Have you spoken to the nurses or chemotherapy educator where you are treated? They should be able to educate you on treatments for the side effects you are experiencing. I know there are medications to help with nausea, (I was an oncology nurse for many years) but I don’t know if there is anything new to help with itching. Have you told the doctor about your shortness of breath? It’s important that they know. I hope I’ve been able to help a little. Becky
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Hi, @marcyprof - you'll note I moved your post here to this discussion you've participated in before on high grade glioma, as I believe you will find the most members who can interact with you on whether they have been treated with methotrexate here in this discussion, and if so, what side effects they may have encountered with this medication and what may be helping with those.
Though you are being treated for glioblastoma multiforme (GBM), some Connect members who have mentioned methotrexate treatment have autoimmune conditions, yet may have some thoughts for you on side effects of this therapy, such as @maui6698 @candrgonzalez @marshahj @anya. @lioness @becsbuddy also may have some thoughts for you.
I believe from what you are saying that you have had methotrexate side effects including nausea, itching, hair loss and shortness of breath, correct? If so, have you found anything helps with these side effects? What does your doctor suggest?