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High grade Glioma - What questions should I ask?

Brain Tumor | Last Active: May 2 7:18pm | Replies (58)

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@colleenyoung

Hi @pejiota4jack and @eileen61, how did you respective trips to Rochester go? Did you happen to run into each other while you were there?
I'd love to get an update from each of you. What are the options? Next steps?

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Replies to "Hi @pejiota4jack and @eileen61, how did you respective trips to Rochester go? Did you happen to..."

I was in Phoenix. Got worked up for my CT simulation for proton beam radiation therapy, but am waiting for authorization from the insurance. The chemo meds were mailed to my home in NM. Had a post biopsy MRI which shows things as "stable", which is as good as I can hope for. I'll be driving back to Phoenix on Sunday the 15th, with the intention of starting treatment on the intended day of Monday September 16th. Have my Airbnb reserved for six weeks, so I'm anxious about getting this process underway. (Due to the location of the "big ugly", surgery of any kind was not advised).