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High grade Glioma - What questions should I ask?

Brain Tumor | Last Active: May 2 7:18pm | Replies (58)

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@dianeem

In answer to your questions, @eileen61, my husband did amazingly well during his radiation & chemo treatments with very few side effects. He took the prescribed anti-nausea medicine before chemo and didn't get sick. The most notable side effect was hair loss on the left side of his head where they're targeting the tumor area. He had only minor fatigue and continued to work during treatment, thanks to a very understanding, flexible boss. His follow-up MRI is now scheduled for Aug. 30, and we'll meet with the oncologist on Sept. 3 to learn the results. We're very optimistic and hopeful. Our situation sounds very similar to @debraannk's husband, where he feels as healthy as before all this. He's also planning to begin that next round of chemo (pills) after our Sept. 3 appointment, and he'll do that for six months. Regarding where to stay, @eileen61, you may want to ask a Mayo case worker/social worker to assist you with this. I think there's a Residence Inn next door, and there's also a facility that Mayo has, but I don't know much about it. I understand it's always full and a blessing if you're able to get in, but I believe it's for people in your same situation. Check into it!

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Replies to "In answer to your questions, @eileen61, my husband did amazingly well during his radiation & chemo..."

I'm glad to hear of the relatively few side effects! Hopefully I'll be able to get out and about between treatments or at least on the weekends. I'll be 7 hours from home, so working isn't an option. I guess I'll be looking at it as a 6 week introspective retreat! Better get my Netflix renewed on my tablet! Plus time to consider some healthy lifestyle changes! I think I have an extended stay hotel lined up, plus they have a shuttle that can get me to Mayo if I'm not feeling like driving. I'm looking at this as "Eileen's Big Adventure". Lol. Thanks for the info!