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High grade Glioma - What questions should I ask?

Brain Tumor | Last Active: May 2 7:18pm | Replies (58)

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@eileen61

Awesome news for you both! I'm not surgery is an option for me but that's good to hear he's doing well. I'm not looking forward to staying in the Mayo (Phoenix) area for six weeks, but at least it'll be a bit cooler in September, I hope. Just need to figure out the logistics of lodging and transportation. How was your husband during his treatment? Was he able to be independent? I'm probably putting the cart before the horse at this time, but I'd like to know what's realistically possible. I'm hoping my husband can remain in NM and work during the week and maybe visit, or perhaps our daughters who live in Tucson can visit, on the weekends. Too many thoughts running thru the brain. Thanks so much for the support!

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Replies to "Awesome news for you both! I'm not surgery is an option for me but that's good..."

He had a grand mal seizure back on January 1st and that is what took us to Mayo clinic in Rochester for testing. Since then he has not been able to drive otherwise he's been very independent. The brain surgery to remove as much of the tumor in his right front lobe was very scary, but he recovered from that in a few weeks and then started daily radiation and chemo pills. We are blessed that we only live an hour from Rochester, Minnesota. During those treatments he only had one bad day if vomiting. And he became more tired as his platelets went down, but was still fairly active most days. Sending you our best wishes and many prayers 🙏

In answer to your questions, @eileen61, my husband did amazingly well during his radiation & chemo treatments with very few side effects. He took the prescribed anti-nausea medicine before chemo and didn't get sick. The most notable side effect was hair loss on the left side of his head where they're targeting the tumor area. He had only minor fatigue and continued to work during treatment, thanks to a very understanding, flexible boss. His follow-up MRI is now scheduled for Aug. 30, and we'll meet with the oncologist on Sept. 3 to learn the results. We're very optimistic and hopeful. Our situation sounds very similar to @debraannk's husband, where he feels as healthy as before all this. He's also planning to begin that next round of chemo (pills) after our Sept. 3 appointment, and he'll do that for six months. Regarding where to stay, @eileen61, you may want to ask a Mayo case worker/social worker to assist you with this. I think there's a Residence Inn next door, and there's also a facility that Mayo has, but I don't know much about it. I understand it's always full and a blessing if you're able to get in, but I believe it's for people in your same situation. Check into it!