@eileen61 Hi, I’m Becky. I didn’t have a brain tumor like you, but an inflammatory lesion on my brain. I know exactly how you feel with all the unknowns swirling around you! I was so upset and angry and just wanted it to be over and let me get back to my life. That never happened. One thing that was very helpful from the beginning, was my husband kept a log of everything. Who we saw, what tests were done, questions asked, answers, etc. I’m so glad he did, because I don’t remember the first few weeks at all. Have your husband go to ALL appointments and take good notes! You can even use the recorder on a smart phone and send it to yourself via message or email. Keep a spiral notebook handy and write down questions you want to ask. Make different sections for each specialty you see. Mine is divided into primary care doctor, neurologist, oncologist, ophthalmologist, etc. That way I have all my info in one place. And I should add a therapist to the list! Mine helped me get thru some of the tough times and gave me ways to deal with my anxiety and occasional panic attacks. I kept saying, “I’m a nurse, we help others. I’m not one who needs help.” But I guess I do. I wish you all the best as you start your journey. I only wish I could be there and walk with you.