← Return to Undiagnosed...something is wrong.

Discussion

Undiagnosed...something is wrong.

Chronic Pain | Last Active: Aug 28, 2019 | Replies (10)

Comment receiving replies
@astaingegerdm

@ryannelexisd - I agree that you are too young to live with this pain! Also agree that it’s hard to find a good MD in Florida. My daughter lived there some years and she also had serious symptoms ignored by her specialists and internist. However, we found a Cleveland Clinic in West Palm Beach - awsome. They have a hospital near the Gulf coast I think. Then there is Mayo in Jacksonville and University of Miami.
You have one autoimmune disease, Raynaud’s, and you can have another one. Also, fibromyalgia is common when you have autoimmune. With fibro you feel very old! My daughter was first diagnosed by a rheumatologist at age 16. My son was diagnosed at 13, by a neurologist then rheumatologist.
If all tests are normal I recommend that you see a rheumatologist at one of the institutions I mentioned. Don’t give up!! Don’t let anyone tell you it’s all in your head! From my own experience with chronic pain I know depression and and anxiety.
Inge

Jump to this post


Replies to "@ryannelexisd - I agree that you are too young to live with this pain! Also agree..."

This is a really big help. I actually live right in the heart of west Palm Beach. So I'm definitely going to check out the Cleveland Clinic. I really want to see a rheumatologist and see if I can make any progress.