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Aromasin (exemestane)

Breast Cancer | Last Active: Nov 12, 2023 | Replies (39)

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@trixie1313

@hopeful33250 My first lumpectomy was infiltrating ductal carcinoma with erosion of 1 of 3 cancerous nodes. Prior to that, I was given a body scan and bone scan. Following my first lumpectomy, I asked for an MRI (which is not standard protocol) as I was concerned about the unaffected breast. Had I not asked for that, we would not know that there was a second tumor, i.e. the infiltrating ductal carcinoma with neuroendocrine differentiation. And thank goodness, the pathologist examining that tumor did the correct staining or this would not have been known at all as it is rare, but the pathologist knows their stuff! I have not had any other blood work or any Gallium scan. Six months ago I had my first PET scan which was completely normal. The most recent PET scan noted the area in my previously affected breast that on recent mammogram showed a cluster of microcalcifications. Both the radiologist from mammogram and the radiologist reading the PET scan have suggested close monitoring and so that's where we remain at this point - mammogram and PET scan again in 6 months.

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Replies to "@hopeful33250 My first lumpectomy was infiltrating ductal carcinoma with erosion of 1 of 3 cancerous nodes...."

@trixie1313 I am glad that you have been following up and that you are advocating for yourself. That was a great decision to insist on the MRI. I take it that this MRI was on the unaffected breast?

You might find it helpful to read about neuroendocrine tumors. The carcinoid cancer foundation has a great website with lots of good information that you might find helpful. Here is their website, https://www.carcinoid.org/.