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Aromasin (exemestane)

Breast Cancer | Last Active: Nov 12, 2023 | Replies (39)

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@hopeful33250

Hello @trixie1313,

I noticed your lastest post and did google the terms, "infiltrating ductal cancer with neuroendocrine differentiation" but did not find anything helpful (especially in layman's terms). Your post caught my interest because I say the word "neuroendocrine." I have had three surgeries for neuroendocrine tumors in the upper digestive tract and I know this is a rather rare disorder so I thought I would check in with you and perhaps learn a little more about your history of breast cancer.

Please feel free to share your health journey as you are comfortable doing so. I would especially like to know if you have been examined for any other NETs in your body (thinking of the Gallium 68 scan), etc., or any other blood work specifically for NETs?

I look forward to getting to know you!

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Replies to "Hello @trixie1313, I noticed your lastest post and did google the terms, "infiltrating ductal cancer with..."

@hopeful33250 My first lumpectomy was infiltrating ductal carcinoma with erosion of 1 of 3 cancerous nodes. Prior to that, I was given a body scan and bone scan. Following my first lumpectomy, I asked for an MRI (which is not standard protocol) as I was concerned about the unaffected breast. Had I not asked for that, we would not know that there was a second tumor, i.e. the infiltrating ductal carcinoma with neuroendocrine differentiation. And thank goodness, the pathologist examining that tumor did the correct staining or this would not have been known at all as it is rare, but the pathologist knows their stuff! I have not had any other blood work or any Gallium scan. Six months ago I had my first PET scan which was completely normal. The most recent PET scan noted the area in my previously affected breast that on recent mammogram showed a cluster of microcalcifications. Both the radiologist from mammogram and the radiologist reading the PET scan have suggested close monitoring and so that's where we remain at this point - mammogram and PET scan again in 6 months.