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Diagnosed with Meningioma

Brain Tumor | Last Active: Apr 8, 2023 | Replies (50)

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@mrector

I am so sorry you are going through this. I was diagnosed last year and had part of my tumor removed August 28, 2018. My tumor was wrapped around my left eye optic nerve and carotid artery. I have lost most of my vision in my left eye. I started losing vision in that eye before I was diagnosed. That's the only reason they suggested an MRI of my brain because of rapid vision loss. My surgery went well. I was in the hospital for 4 days. First 2 days in ICU, which is normal. If you have specific questions please feel free to ask. There are several of us on here that have been through this and will try to help. I am praying for you as you go through this journey.
Mandy Rector

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Replies to "I am so sorry you are going through this. I was diagnosed last year and had..."

Hi Mandy! My name is Melissa James & I was recently diagnosed with ONSM on my right eye. I had biopsy surgery for proper diagnosis before starting radiation this past week. I noticed you said you had surgery to remove part of the tumor, did you have radiation/Chemotherapy for the rest? Wondering how you’re doing & if you’ve regained any of your sight? Hoping you’re doing well & sending prayers & good vibes your way ❤️