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BCG For Bladder Cancer: Anyone got experience to share?

Bladder Cancer | Last Active: Feb 8, 2021 | Replies (24)
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@colleenyoung

Hi @sue225, i can imagine that you're worried about the cumulative effects of Bacillus Calmette-Guerin or BCG treatment for bladder cancer and that you want to prepare yourself for what to expect for your husband.

You'll notice that I moved your question to this existing discussion with @parus and am also tagging other members who have experience with BCG to share their tips and stories, like @texascitylady @judith4 @plugger @tclingan25 and @sepdvm

Sue, did your husband have treatment for bladder cancer in 2014? When does he start BCG treatment?

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Replies to "Hi @sue225, i can imagine that you're worried about the cumulative effects of Bacillus Calmette-Guerin or..."
sue225 | @sue225 | Feb 8, 2021

My husband has had bladder cancer for fourteen years and has had 8 TURBS. Along the way, he had one successful treatment with BCG, a treatment in 2014 which he did not complete due to intolerable side effects and a treatment with mitomycin and more recently a treatment with gemcitabine which he also could not tolerate.
He is now giving BCG another try after 2 TURBS in 2020. Two treatments are over. The 2nd treatment caused some discomfort which resolved after a day or two. (Irritable bladder symptoms, minimal bleeding on the day of). He really does not want to deal with bladder removal and at the same time is anxious about cumulative side effects and what treatment #3 will be like.
CAT scan coming up this month as well. Everything backlogged here in Canada. The CAT scan really should have been done prior to starting BCG.
Thanks so much Colleen.

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