← Return to Possible NET with No Evidence of Tumor: Mediastinal Mass

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@hopeful33250

Hello @megansims,
I'm not familiar with this test but is it a genetic test of some type? I'll be interested to hear about the results as well as the FDG-PET on Thursday,
Will you post again?

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Replies to "Hello @megansims, I'm not familiar with this test but is it a genetic test of some..."

Thanks @hopeful33250 ! The PET was negative, I did a 5-day trial of short acting Octreotide and felt amazingly better with no symptoms, so the doctor is pondering starting me on the long-acting even without tumor location. They repeated the genetic test on the Octreotide, just to see what it shows. The mass in my chest is double in size than it was several years ago, so they are talking with thoracic surgery to see what to do about it. It sits in the subcarinal space nestled between my aorta and my pulmonary artery- ick.

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