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Possible NET with No Evidence of Tumor: Mediastinal MassNeuroendocrine Tumors (NETs) | Last Active: Nov 2, 2021 | Replies (34)
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Replies to "Hello, @megansims I am so glad to have you posted about this and that you received..."
Good morning. I see Dr. Jason Starr at Mayo Jacksonville, Fl. In the last two years, they have done extensive work ups to include exploratory laparotomy. I’m currently on Lanreotide 180mg X 21 days. Double butt darts suck but they are working lol. Also on 300 mcg of Octreotide as needed. I’m happy to help you or any others on this path. So sorry for what you and the others are dealing with. ~ André