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Possible NET with No Evidence of Tumor: Mediastinal Mass

Neuroendocrine Tumors (NETs) | Last Active: Nov 2, 2021 | Replies (34)
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@hopeful33250

Hello, @megansims

I am so glad to have you posted about this and that you received help at Mayo. It is important to seek out the best NET specialists and you have done so. I admire your proactive approach to obtaining a diagnosis.

One of our members, @andre1221, had a similar diagnostic dilemma and he can share with you how he has been helped by doctors at Mayo in Jacksonville.

Will you post again as you learn more?

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Replies to "Hello, @megansims I am so glad to have you posted about this and that you received..."
andre1221 | @andre1221 | Oct 28, 2019

Good morning. I see Dr. Jason Starr at Mayo Jacksonville, Fl. In the last two years, they have done extensive work ups to include exploratory laparotomy. I’m currently on Lanreotide 180mg X 21 days. Double butt darts suck but they are working lol. Also on 300 mcg of Octreotide as needed. I’m happy to help you or any others on this path. So sorry for what you and the others are dealing with. ~ André

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