Connect
← Return to Possible NET with No Evidence of Tumor: Mediastinal Mass
Discussion
Possible NET with No Evidence of Tumor: Mediastinal Mass
Neuroendocrine Tumors (NETs) | Last Active: Nov 2, 2021 | Replies (34)Comment receiving replies
Hi @megansims, I moved your message to the previous discussion that you started in the NETs group, so that others can read the history of your diagnosis journey. I'm relieved that you're were able to go to Mayo for evaluation with NETs specialists. It sounds like you are dealing with specific complexities that really need the attention of neuroendocrine cancer experts. I'd also like to invite @tomewilson @andre1221 @joanney @gapsc and @mollie59 into this discussion.
Megan, will you return to Mayo for the FDG Pet scan?
Replies to "Hi @megansims, I moved your message to the previous discussion that you started in the NETs..."
Connect
Colleen, Thank you for the reply! It has been a frustrating road to say the least. I was very impressed with our care at Mayo but it has been tough to still not have specific answers. It is hard to have an 'expert' tell you that he is perplexed! I am having the FDG-PET performed at my local facility with the images going to Mayo for review! We are not planning to head back to Mayo until next Spring for follow-up, although we are doing a phone follow-up after the results of all the extra testing, so things may change after that!