← Return to Possible NET with No Evidence of Tumor: Mediastinal Mass

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@megansims

Just recently went to Mayo for continued evaluation. The Oncologist there agreed that my symptoms were consistent with Carcinoid Syndrome and my Biomarkers were also suggestive of a NET, but he was genuinely perplexed that a tumor could not be located. I have had all negative scans. The only thing that they found was in my lungs. Initially, all of the Chest CT results came back showing old granulomatous disease (Histoplasmosis) based on Mediastinal Lymphadenopathy and calcification. He was concerned, however, about a large (2.9 cm x 2.4 cm) calcified subcarinal mass that did not totally fit with the expected pattern of calcification seen in Histoplasmosis. The Pulmonologist said it is too dense to biopsy. The Oncologist said that only 30% of Lung NETS show on Gallium so he is getting a FDG PET CT. That will be in 2 weeks. Is it ever possible that a NET could form in an area that already had calcification from a previous infection? The Pulmonologist said it was one of the biggest mediastinal calcifications he had seen in 37 years.

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Replies to "Just recently went to Mayo for continued evaluation. The Oncologist there agreed that my symptoms were..."

Hello, @megansims

I am so glad to have you posted about this and that you received help at Mayo. It is important to seek out the best NET specialists and you have done so. I admire your proactive approach to obtaining a diagnosis.

One of our members, @andre1221, had a similar diagnostic dilemma and he can share with you how he has been helped by doctors at Mayo in Jacksonville.

Will you post again as you learn more?

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