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I had an EUS with FNA and results showed benign background with some atypical cells. Doc said I don't have cancer, but he is sending me to an oncology surgeon Aug. 1st. He said since he has dealt with many issues he may be able to sort things out and give me some ideas. All my tests have shown mild pancreatitis, but I don't have the symptoms. My Lipase was a little elevated, but Amylase was always good. Have been dealing with this since April 1st. Went to ER thinking I was having a heart attack, because of the awful pain in chest, but heart was good. Then I went to my GI thinking it had to be digestive. Some days feel really good, but I am losing weight and tired. Again, I can be losing weight because I changed my diet so much.
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Hello @harper7745
While I have not had a diagnosis of pancreatitis, I do have some other problems with the pancreas and have had several digestive tract surgeries for other problems. I can understand the concerns that you speak of in that you do not have a good understanding of why the doctor is suggesting that you have pancreatitis. If that correct?
I am glad to hear that you have an upcoming appointment with a specialist on Aug. 1. If you prepare for this appointment with a list of your questions and concerns this will help you. I am reminded of a post on Connect about how to approach an appointment with a new specialist and I thought that some of the ideas might be helpful to you. Here is the link, https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/?pg=1#comment-240765
After you read the post on this link, then start your own list of things to discuss with this new doctor. At the appointment, take each of your questions one at a time and make sure that he or she answers each question so that you understand what is being said. Remember, you are their patient and it is important that the medical team communicate with you so that you understand what is happening.
Many of us on Connect have had difficult and/or hard to diagnose medical problems and we have learned to be our own advocate in our health care. Take time to educate yourself on pancreatitis and have your questions answered by this new doctor.
Will you post again and let me know how you are doing with this process?