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kathyhg (@kathyhg)

Water at freshwater lake

MAC & Bronchiectasis | Last Active: Oct 8, 2019 | Replies (48)

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@windwalker

@sandykayhud Oh dear…that seema like a long time to be voiceless. Have you tried speaking to the Specialty Pharmacist, where the drug came from? Sometimes they provide better answers than the drs concerning medocations. Especially these newer ones. Please keep me posted. I pray your voice comes back soon.

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Replies to "@sandykayhud Oh dear...that seema like a long time to be voiceless. Have you tried speaking to..."

I did talk to the Kroger Pharmacy (that is where my Arikayce came from) when I first lost my voice. They did not offer much advice and really said they had rather talk to my pulmonary dr if he wanted to call. Basically they just gave me the same thing that was listed as the side effects in the materials they sent me. I do not know if my dr talked to them. He just said to stop the Arikayce. Today he is putting me on prednisone and diflucan to see if that will help with the voice. Still waiting to try to get in with MAC specialist in Birmingham. Lord is teaching me patience and I am not a real good learner..HA

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