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kathyhg (@kathyhg)

Water at freshwater lake

MAC & Bronchiectasis | Last Active: Oct 8, 2019 | Replies (48)

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@sandykayhud

At this point I am just waiting to try and get voice back. It has been completely gone for over a week. My pulmonary dr is trying to get me in at UAB with dr that specializes in MAC so will probably not start anything till I see him. Have you had anyone who tried the Arkayce and lost their voice who did not get it back? Getting sorta concerned. My husband may enjoy the peace and quiet but even he is getting ready for some noise from me!

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Replies to "At this point I am just waiting to try and get voice back. It has been..."

@sandykayhud Hi. I searched and searched the internet to try to find the answer to your question. I have not come across anything that says that Arikayce can cause you to lose your voice permanently. It is a fairly newly released drug, so it has a short history. I had a similar thing happen to me when I first started on inhaled tobramycin. I am now very used to it and it doesn't make me hoarse any longer. It took me several weeks to get beyond the hoarse stage. Are you continueing on with it?

just an update:After 12 days I am getting my voice back!! Dr still does not want me to restart at this point.

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