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Cardiac Sarcoidosis

Autoimmune Diseases | Last Active: Aug 7, 2019 | Replies (12)

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@johnbishop

Hi @craigz20 -- I would like to add my welcome to Connect along with @estrada53 and @becsbuddy. I'm hoping some other members who may share your symptoms will join the discussion and share their experience. I did find that Mayo Clinic has a Cardiac Sarcoidosis Clinic so that might be something to check into. It's good that you are being your own advocate. From what I've read the jury is still out on using corticosteroids as a treatment and since I have PMR that's in remission I can relate to taking steroids and not liking the side effects.

Mayo Clinic launches Cardiac Sarcoidosis Clinic
-- https://www.mayoclinic.org/medical-professionals/cardiovascular-diseases/news/mayo-clinic-launches-cardiac-sarcoidosis-clinic/mac-20436865

NCBI - Cardiac sarcoidosis
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1860791/

UpToDate - Management and prognosis of cardiac sarcoidosis
-- https://www.uptodate.com/contents/management-and-prognosis-of-cardiac-sarcoidosis

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Replies to "Hi @craigz20 -- I would like to add my welcome to Connect along with @estrada53 and..."

Thank you for this information.