@estrada53 Thanks for your responses !!!!

I just feel that steroids come in to play when doctors really have no answers, they just hope they will work while they are destructive to other parts of your body. I am trying to rid my office and house of all dust and mold (I am highly allergic to both) as well as to remove all wheat and gluten from my diet as I am also highly allergic to wheat ! I see a Dr. of Chinese Medicine / herbalist, acupuncturist and see a nutritionist and maintain a completely anti inflammatory diet. I am from California you know !!!!!

Just trying anything naturally that could also provide a benefit (even CBD oil) aside from nuking my body with Steroids. Also, from what I read....they really don't know if the steroids work for everyone so you gotta put up with negative side effects just to see whether or not they will work. Anyway...I might not have any choice and will likely try anything at this point (including all of the pharmaceuticals) to ensure that the disease does not progress or cause more damage. I'm going for an MRI of my heart on Monday to see if there is any scarring...PET shows that sarc is alive and well on my heart, just not sure exactly where.