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MPS 3 found as cause for my son’s dementia like symptoms

Brain & Nervous System | Last Active: Aug 6, 2019 | Replies (6)
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@adah

There is infusion gene therapy and/or bone marrow transplant, will know more after consulting with drs and genetic counselor.

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Replies to "There is infusion gene therapy and/or bone marrow transplant, will know more after consulting with drs..."
Lisa Lucier, Moderator | @lisalucier | Aug 5, 2019

Hi, @adah - getting a diagnosis finally for your son must be a relief. It sounds as though you have been a strong advocate for him.

Have you had your consult with the doctors and the genetic counselor you mentioned would follow the genetic testing? If so, will you share anything you learned you feel comfortable sharing?

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