@darlingtondoll Sighhhh...its when life becomes a chess match. I hear your struggles and give you so much credit. My muscles are weakening more and more. My perseverance leaves me exhausted and in a great deal of pain. I get it. When you push to have some normalcy in life then you pay dearly. I continue to try and find a healthy balance. I pushed yesterday (as I try everyday) and got my taxes done and wanted to have lunch after with my husband. It was a disaster for me and sucked the air out of him seeing me suffer. I wonder why I freakin bother. I'm battling migraines and the neuropathy throughout my head, neck and shoulders is beastly these days. So, lifting my arms to eat a meal is very difficult. Holding up my head is difficult. Using my hands is difficult.

Days when my eyes (dry eye, migraine, photophobia) feel like they bleed bc I push so much to look at phone, hands full of neuropathy so holding phone is difficult. I use voice to text alot or just stubbornly keep pushing and hurting myself more. My legs barely work most times and I often think of you, when I'm complaining in my head, and say knock it off to myself! I'm going to stop here as my list continues but nobody needs to hear more boo hooing.

Thanks for sharing today
Rachel