Eliminating Foods for Neuropathy pain

I have had the same results on a keto diet. When I stay away from alcohol, sugar, bread and any other high glycemic carbohydrates and stick mostly with good fats and proteins my PN is more manageable. I also try to avoid glutens. I recently had a bad experience I want to share and see if anyone else has had the same experience. Several weeks ago I bought some “gluten free” chips made with cassava and ate half a bag. Later that night I woke up with much worse burning in my feet and legs than I usually have at night. I finally had to get up. It took a couple of days to calm down. I learned on line that the cassava root contains a deadly toxin that can be eliminated by proper washing and preparation. It is widely used in Africa and Latin America. I suspect that in processing not all of the toxins are removed, just enough to be safe to eat. A couple of nights ago my wife bought some Bobs Mill “gluten free” flour and made really good banana bread muffins. I ate three muffins that evening and by 2:00 am I was awake with the same level of pain as I had experienced before after eating cassava chips. I checked the label and found the flour contained tapioca which is made from cassava. I also learned on line that people who regularly eat cassava can develop a severe form of PN that has a correlation to low levels of Thiamine (Vit B-1). My plan is to be careful to check labels to avoid cassava and supplement with B-1.

I have had the same results on a keto diet. When I stay away from alcohol, sugar, bread and any other high glycemic carbohydrates and stick mostly with good fats and proteins my PN is more manageable. I also try to avoid glutens. I recently had a bad experience I want to share and see if anyone else has had the same experience. Several weeks ago I bought some “gluten free” chips made with cassava and ate half a bag. Later that night I woke up with much worse burning in my feet and legs than I usually have at night. I finally had to get up. It took a couple of days to calm down. I learned on line that the cassava root contains a deadly toxin that can be eliminated by proper washing and preparation. It is widely used in Africa and Latin America. I suspect that in processing not all of the toxins are removed, just enough to be safe to eat. A couple of nights ago my wife bought some Bobs Mill “gluten free” flour and made really good banana bread muffins. I ate three muffins that evening and by 2:00 am I was awake with the same level of pain as I had experienced before after eating cassava chips. I checked the label and found the flour contained tapioca which is made from cassava. I also learned on line that people who regularly eat cassava can develop a severe form of PN that has a correlation to low levels of Thiamine (Vit B-1). My plan is to be careful to check labels to avoid cassava and supplement with B-1.

That's been my experience Peggy. The waxing and waning is something my doctors can't explain which means they don't know. I can't believe they told you your nervous system is dying when they don't know why. How depressing is that? I wonder if any other doctors has said this to their patients...and if it is true. So what happens when it's dead? Did they give you an end of the road scenario? You should ask if they've ever treated anyone who's died from SFN. From what I've read, people don't die from SFN.

If my nerves are “dying” I don’t understand why I can go from burning pain in my feet and legs that wakes me up at night to feeling normal with no pain or tingling for hours during the day. Does anyone have an answer for why pain from PN comes on after I have gone to bed?

If my nerves are “dying” I don’t understand why I can go from burning pain in my feet and legs that wakes me up at night to feeling normal with no pain or tingling for hours during the day. Does anyone have an answer for why pain from PN comes on after I have gone to bed?

If my nerves are “dying” I don’t understand why I can go from burning pain in my feet and legs that wakes me up at night to feeling normal with no pain or tingling for hours during the day. Does anyone have an answer for why pain from PN comes on after I have gone to bed?

Me too, my thinking is that it has to do with circulation, but my neuro disagrees; she thinks it is because at night when at rest and inactive our minds and bodies are more aware of our pain. I have noticed other aches and pains show up at night while sleeping also.

I’m more active in the morning and maybe that helps with the pain. Or maybe I’m active because I have less pain??? I’m paralyzed, so it has nothing to do with the fact that I’m not using my legs, but I am transferring a lot between the shower, the bathroom and a chair at breakfast. I get involved in the preparation of our noontime meal which is our main meal of the day. Sometimes that may take two hours. Today it will be shrimp à la Grecque. By the time we finish the meal at noon, I need to lie down an elevate my legs because of fluid accumulation and that’s when they start to hurt. But when we go out again at 4 PM, they hurt even more. So it’s not just inactivity that makes them hurt. Last night we went out to dinner with friends, and the pain was so intense, that I was wincing with pain until we got home.

@darlingtondoll Sighhhh...its when life becomes a chess match. I hear your struggles and give you so much credit. My muscles are weakening more and more. My perseverance leaves me exhausted and in a great deal of pain. I get it. When you push to have some normalcy in life then you pay dearly. I continue to try and find a healthy balance. I pushed yesterday (as I try everyday) and got my taxes done and wanted to have lunch after with my husband. It was a disaster for me and sucked the air out of him seeing me suffer. I wonder why I freakin bother. I'm battling migraines and the neuropathy throughout my head, neck and shoulders is beastly these days. So, lifting my arms to eat a meal is very difficult. Holding up my head is difficult. Using my hands is difficult.

Days when my eyes (dry eye, migraine, photophobia) feel like they bleed bc I push so much to look at phone, hands full of neuropathy so holding phone is difficult. I use voice to text alot or just stubbornly keep pushing and hurting myself more. My legs barely work most times and I often think of you, when I'm complaining in my head, and say knock it off to myself! I'm going to stop here as my list continues but nobody needs to hear more boo hooing.

Thanks for sharing today
Rachel

Unbelievable reaction!!!!