Eliminating Foods for Neuropathy pain

I feel the same way! The gabapentin makes me so tired that the coffee/tea is what keeps me moving forward.

Hi @klro0001, there is another discussion for the same topic where your post will receive more visibility. I'm tagging our moderator @lisalucier to see if we should move your post to the following discussion where you can meet other members and learn what helps them.

> Groups > Neuropathy > Eliminating Foods for Neuropathy pain
-- https://connect.mayoclinic.org/discussion/neuropathy-pain-1/

I found a great book related to nutrition and cellular health that you might find helpful. It's by Dr. Terry Wahls - The Wahls Protocol.
https://terrywahls.com/about/about-terry-wahls/
Have you tried any diet and found it helpful?

Thanks @johnbishop! I didn’t know this was already being discussed. At this point, I just have odd sensations and no pain. After doing some research, I decided to try the keto diet. I’ve been on it for a month. Sensations are still there and I’ve lost 12 pounds that I did not want to lose.😐 I guess I’m trying to hear positive and/or negative experiences from actual people who are currently living with nerve issues. Thanks again for your help and I’ll check out discussion that you referenced above.

Kia

Hi Kia, hope you find some answers that help. I think diet plays a part in a lot of autoimmune diseases but figuring it all out is another problem ☺

Yes, figuring it all out is challenging! Thanks for the book reference. I plan to check it out at the local library when I return from my trip.

@klro0001

I decided last week to limit my caffeine intake. It's hard to give up that second cup of coffee in the morning. That should have some effect on my frequent bathroom trips. I don't remember if caffeine has any connection to neuropathy, but I won't complain if it does.

I have a list of medical issues that are potentialy related to my autonomic neuropathy. One is trouble swallowing. I have to chew a lot to puree my food enough so it will go down. Every swallow stops at the valve that's supposed to open automatically, so meals are usually pretty slow. I'm still chewing long after my wife is finished. It's called esophageal dysmotility. I'm not supposed to drink carbonated beverages, and I'm not supposed to use a straw because it propels the liquid to the back of my mouth too fast.

I'm not on a diet, but there are certain foods that I try to avoid. Bread is the worst. It helps if it's toasted, so it doesn't gum up in my esophagus. I really like steak, but it takes so long to chew it up enough, and I'm finding that I get tired of chewing, so I just give up and put the rest of it in the fridge and have it as a snack or with a meal. Back a couple of years ago when I had the swallowing tests, I didn't have any problem with drinking, and used liquids to help get the food moving along. But now I have trouble with liquid as much as solids.

I also have double vision, tinnitus, urinary issues and muscle weakening. I'll be walking around the yard and out of the blue my left knee just turns to jello and I fall. The last time it happened, I was going down the stairs off the deck. Fortunately I was holding on to the railing and just sat down unexpectedly.

If I remember correctly, there are lots of kinds of neuropathy, and each neuropathy can affect each person differently. It's a complicated journey finding what things will give us relief from whatever neuropathic symptoms we have. It has helped to read what various people do to cope. And I've found that knowing I'm not alone and I'm not a freek means a lot, and the best support I've found is here in Mayo Connect. I hope it helps you as much as it has me.

Jim

Hello! Does anyone follow a special diet (i.e., keto, paleo, anti-inflammatory)? If so, do you think it has any positive effect on your neuropathy symptoms?

@klro0001 @jimhd @johnbishop - just wanted to let you know I moved the discussion started on Neuropathy and Diet here to this existing discussion, "Eliminating Foods for Neuropathy pain," a discussion johnbishop mentioned, so that you can connect with those talking about this topic and they can also discuss what you've posted recently on it. Perhaps members like @somisgirl @pfbacon @hotfooted @avmcbellar and others can share about whether they have followed a special diet expressly to help with neuropathy, @klro0001.

No. I'm hypoglycemic, I've been eating the medical diet for hypoglycemia since 1987. I wouldn't mess with it. Peggy

I only eat chicken or salmon with organic green beans or organic broccoli or organic cabbage or cauliflowers. Eat very low carbs or no carbs at all. It helps my toes, under my toes and my right leg and my left leg has some neuropathy, but not that much. I've noticed that if I eat practically any carbs my neuropathy starts to act up. Everyone is different, but that's what I've noticed with me. I fry up my veggies most of the time with olive oil to get my healthy fats in. I put organic flax oil in my organic oatbran and organic oatmeal with organic flax meal, organic hemp protein powder from Nuvina. I order the powder from Vita-cost. com. I also have organic flax milk too. That's where I get my carbs. I only use 1/4 cup organic oatbran or oatmeal because of the carb content. I hope this helps.