I appreciate my doctors telling me what's going to happen - I kept after them until I got answers. Information on websites didn't mention anything past the very beginnings (needle stick feelings and numbness). As we get older, parts of our body wear out and stop working; sometimes it's the kidneys, liver, or heart that give out, or brain (Alzheimer's et al.). With me and 24 million other Americans, it's the nervous system. Eventually, the pain gets so bad that nothing will kill it - I asked the pain doctor if people with neuropathy have high suicide rates, he said 'yes, very high'. My neurologist said that the nervous system dies at the extremities first, then continues dying toward the center of the body - eventually, it stops the lungs and heart. She also said that higher and higher doses of medicines stop the heart. She didn't say any specific medicine. I don't know of any medical research company who is looking for a cure for neuropathy. I don't find any of this depressing, just interesting. I accepted long ago that I will die some day, like everyone else. I'm 68, I've had a rich, full life, my daughter is grown, married, has a good career and friends, doesn't need me. My husband will be lonely - I'm sorry for him, but he's older than me, has serious health problems, he will probably join me soon. There are a couple of things on my bucket list that I didn't get to ... ah well. Mick Jagger said "we don't always get what we want". My friend Jane added "We don't always get what we need - we get what we get". I can spend what's left of my life sniveling, or having a good time with friends and pulling together all the comedy I've written into a book so they can enjoy it after I'm gone. I'm not going to any more doctors or doing any more tests or chasing down any new health issues; I don't want to waste any time. Peggy
@pfbacon I like your attitude.. We do what we can to get comfort and less pain, then just get on with living life and enjoying it for as long as it lasts. At the present, I'm using up more of my own by helping care for my dying son.. but until a month ago I was at my own home and my husband was helping care for me.. My son is an amputee, has both diabetes and parkinson's, has been on dialysis for 7 years.. Now he says he's ready to end dialysis and just let go of his stay here.. It's wearing us all out, trying to take care of him, but we are in it for the long haul.. He is also narcissistic and that makes it very difficult for his caregivers.. Right now it's taking 3 of us to keep him going.. and he is still going to dialysis, but like yesterday and last week, he skips a visit, then has to make up for it with 2 days in a row.. This is not an easy road to follow for any of us.. Meanwhile, my husband is home alone and in another state, while I'm living here and losing more of myself everyday.. Son won't go to a nursing home, or use hospice... prefers his mom and daughter and the next door neighbor doing everything for him.. Me.. I just want to go home to my dear husband.. It isn't easy, by any means..