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What happens following a Mayo appointment

Posted by emkeizer @emkeizer, Jul 19, 2019

We just found out we got an appointment and couldn’t be more thrilled. However - were wondering how coordination of care goes after you have your visit. We are hoping for a diagnosis and a treatment plan from Mayo. But we are coming from Michigan so will obviously be going home. Will there be a way to coordinate all treatment from home once the path has been set? Or will we have to stay in Minnesota for he duration of the treatment?

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susan2018 | @susan2018 | Aug 17, 2019
In reply to @rosemarya "I have chosen to make this a relaxing afternoon and to visit with some fellow Mayo..." + (show)
@rosemarya

I have chosen to make this a relaxing afternoon and to visit with some fellow Mayo patients. It is hot and dry here in central Kentucky, so I'm inside with the AC and with my legs propped up for the afternoon!

@emkeizer, How are you doing? Have you traveled to Mayo in Rochester for your appointment, yet? Or is it still on the horizon? I recently saw a friend at our farmers market here, who had received his diagnosis and treatment at Mayo, and now is able to receive it locally. I hope that you will be able to coordinate your at-home care with your local provider if that is what works best for you.

@marvinjsturing, I'm dropping in to say "Hi". I send you my thoughts and hopes as you continue on your journey. Also a dose of patience is included.

@nancy82415, I like the Mayo Patient Portal, too. I can easily access my records from 10 years back. My local health care has a portal, but if I don't access it within a limited time, the information disappears from my site. Then I will have to take extra steps to have someone pull it up for me. I have learned that it can be time consuming when that happens.

@tayloryvette, How are you feeling? I am concerned about you and your liver issues. Have you made any progress toward getting an opinion from Mayo?

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This just popped up and I thought it was such a thoughtful thing to do, to just check in. I don’t believe we have communicated but Feel moved to respond. I am not relaxing this afternoon, although I am about to sit outside in my rocking chair for a bit with my afternoon coffee here in sunny Minnesota. Today I have been “madly” cleaning house, stocking the pantry etc in preparation for my husband’s surgery on Wed, Aug 28, at Mayo Rochester for pancreatic cysts. Major surgery that we hope will go well. We have been back and forth to Mayo several times this summer for a diagnosis and treatment plan so our summer has been anything but restful. Sending good thoughts your way.

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Rosemary, Volunteer Mentor | @rosemarya | Aug 23, 2019
In reply to @susan2018 "This just popped up and I thought it was such a thoughtful thing to do, to..." + (show)
@susan2018

This just popped up and I thought it was such a thoughtful thing to do, to just check in. I don’t believe we have communicated but Feel moved to respond. I am not relaxing this afternoon, although I am about to sit outside in my rocking chair for a bit with my afternoon coffee here in sunny Minnesota. Today I have been “madly” cleaning house, stocking the pantry etc in preparation for my husband’s surgery on Wed, Aug 28, at Mayo Rochester for pancreatic cysts. Major surgery that we hope will go well. We have been back and forth to Mayo several times this summer for a diagnosis and treatment plan so our summer has been anything but restful. Sending good thoughts your way.

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@susan2018, I hope that you were able to relax for a while last week in your rocking chair. I send my thoughts and prayers across the miles as you and your husband prepare for his upcoming surgery. I hope that everything goes well. If you have not yet experienced a surgical procedure at Mayo, I can honestly assure you that your husband (and you) are in the best place and will receive the best of care throughout the entire procedure as well as afterwards.
I received my liver and kidney transplant in Rochester at Mayo Methodist Hospital, and I received excellent surgical care, and my husband was kept updated throughout the entire procedure and recovery. I clearly remember being visited by my anesthesiologist and surgeon prior to the surgery, and their words put me completely at ease when I was rolled into the surgery.
Only good thoughts on 28th. Hugs and prayers.

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