← Return to "Dents" in leg muscles


"Dents" in leg muscles

Neuropathy | Last Active: Aug 2, 2023 | Replies (109)

Comment receiving replies

Hello @trellg132

I just looked in on this discussion and I was wondering if you have any problems walking or with gait in general. Are you able to walk straight (without veering to one side or the other)? Any problems with your balance that you are aware of? Have you had any falls?

You indicated that the doctor thought it was related to weight loss. If you don't mind sharing, was your weight loss significant (i.e., over 50 pounds)?

Jump to this post

Replies to "Hello @trellg132 I just looked in on this discussion and I was wondering if you have..."

I also popped into this conversation. I DO have problems with gait. I would fall but I always manage to fall into things or grab onto others. Also I went from 168 to 89lbs in 18 months without change in eating. But was diagnosed with celiac disease and have gained back 19lbs. Prior to April 10 2017 I had sciatica, scoliosis, osteoporosis, osteoarthritis. Then I woke up on the 10th and had lost the use of my right hand and the pain felt like my hand was in boiling water. 10 days later I woke up with the same thing in my left hand. 1st neurologist said PARSONAGE TURNER SYSNDROME and said she would send a letter to my family Dr. When I went to see family Dr. Her words exactly were. I have never heard of this disease YOU WILL HAVE TO GOOGLE IT. I did, it didn't sound like my symptoms. 48 hours after the test where they poke you full of holes I had a heart attack at home whilst having a BM. 2nd neurologist said no it couldn't be PTS. he said was MONO NEURITIS MULTIPLEX. MNM family Dr said. SAME DEAL YOU WILL HAVE TO GOOGLE IT. SAME DEAL it didn't sound like my symptoms.
I went back to my old family Dr. He's not likely to tell me to Google it. He sent me to a different neurologist, the 3rd. When we got there she had gone through all the previous tests done by the others. She had made herself totally knowledgeable of my symptoms. She was what you hope for in a Dr. However yes you guessed it 3rd diagnosis. CHRONIC REGIONAL PAIN SYSNDROME. She explained every detail, no waiting to get results from family Dr. However the news was not good. It is nicknamed the suicide disease. There is no cure and no treatment. Just 24/7 pain. I am on gabapentine. I didn't think it worked until I miss a dose. Also long acting diladid and 2mg fast acting for break through pain. They don't work either. So I cry out in pain I scream in pain. My best friend is sleep and I'm very fortunate that my evening meds do their job and I sleep well. Then I wake up. It's still there. It will always be there. I will never have anything to look forward to again. I'm only 64. I worked all my life now I've lost that. My husband is drifting farther and farther away. I have zero quality of life. I know why it's nicknamed the suicide disease because I fantasize about not waking up. Having a massive heart attack. Because my death is not imminent I'm not eligible for MAID. The thought of living like this for another 2 weeks is hell but 20 years. Will not happen. I will be a statistic. Part of the over 60% that choose to end their life. I pray no one on here has this horrible disease. It breaks my heart that children can get this disease.