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What is your anxiety like?

Depression & Anxiety | Last Active: Nov 11, 2023 | Replies (132)

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@kimcvi

Hello Hank, sorry but I have been a little frustrated and messaging back and forth with my dr at the Mayo. The test was to determine if I have Thomsen or Becker’s disease. I do have Thomsen. I guess I’m frustrated as Thomsen is not suppose to progress but mine is and I stated that to the doctors right away. I know this is rare and not much is known about this. ☹️

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Replies to "Hello Hank, sorry but I have been a little frustrated and messaging back and forth with..."

@kimcvi
Hi Kim, it's great to hear from you again. That is really good news that you have the milder form of MC, Thomsens. I am so sorry to hear that your symptoms are still progressing though. Can you explain in what way they are progressing? Do you mean the anxiety symptoms or the actual physical MC symptoms?

You had mentioned earlier that you wanted to connect with other people who have MC. Any luck so far on that?

Can you elaborate on why you are frustrated by the messaging with the Mayo doctor? Would you be able to have a video meeting with him? Would he do that?

What are your plans at this point? Can you flesh out a lot of what is happening and what you are going through right now? It might help if you could give some more details.

Please try to answer each question one by one if you can. Maybe I or someone else can think of some input that might help.

Again, I am glad to hear from you. I am sad you are still having some issues with what is going on right now.

All my best, Hank