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Preventative double mastectomy

Breast Cancer | Last Active: Mar 7, 2021 | Replies (16)

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@lynniesf

@jodymattinen I was disappointed in 2016 with stage 4 breast cancer, 41 years old tested positive for the gene and decided to have a doubt masectomy with no reconstruction. I am now metastatic in lungs, bones and brain.
My sister then was tested for the gene and was positive. She does not have cancer, but she elected to do a preventive double masectomy with reconstruction. She is Very happy. Knowing that she is able to reduce risk is a mental life saver for her. Sometimes she wishes she didnt have reconstruction. The reconstruction is multiple surgeries. But they look good now and she is happy.

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Replies to "@jodymattinen I was disappointed in 2016 with stage 4 breast cancer, 41 years old tested positive..."

Hi @lynniesf, welcome to Mayo Clinic Connect. Wow, you and your sister really have quite the story. Am I understanding correctly that you both tested positive for having genetic risk and you both elected to have preventative mastectomies? She remains cancer-free, but you were diagnosed with stage 4 breast cancer in 2016. Is that correct?