Hi @jodymattinen, welcome to Connect.
Fellow members @corinneberg @ladylawdawg @elsie37 @doyoga and @casualobserver may be able to share their experiences about prophylactic mastectomy with you. You may also be interested in these discussions:
– Anyone dealing with Atypical Ductal Hyperplasia (ADH)? https://connect.mayoclinic.org/discussion/anyone-dealing-with-atypical-ductal-hyperplasia-adh/
– ATM Gene Mutation and Care https://connect.mayoclinic.org/discussion/atm-gene-mutation-and-care
– High Risk Mutation (ie. BRCA, ATM, RAD51D) https://connect.mayoclinic.org/discussion/high-risk-mutation-ie-brca-atm-rad51d/
- High risk, NOT from BRCA but from typia, such as ALH, ADH, LCIS https://connect.mayoclinic.org/discussion/high-risk-not-from-brca-but-from-typia-such-as-alh-adh-lcis/

I'm glad you started a discussion specific to choosing whether or not to have a preventative double mastectomy (prophylactic bilateral mastectomy). Have you already had surgery or are you currently considering it?

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