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Jkansas66 I can SO identify with you.
I was DX in 2015. I was immediately given the BUG 3. I have literally NEVER been so nauseated. I lost 40 lbs in 3 months and stopped the meds FOREVER!
My second opinion dr said.... “For you the meds are worse than the disease”!
BTW... I am MAC. Free as of April, 2019.
I don’t think I ever had it!
I fully understand everyone is different .
God bless and listen to your gut!
Replies to "Jkansas66 I can SO identify with you. I was DX in 2015. I was immediately given..."
That I agree with No one knows your body like you.I do not think I have MAC either, I have my second appointment in August and I will see what the Dr. says. I have refused pills at this point and the way I feel now I will refuse them again. This is my own opinion. I will post the report as soon as I know it, Thank you and good luck with yours.
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There are times when I question my diagnosis. There were what they called "Emphasematic changes" on my check x-ray when I went in for a physical last year. So that started this freight train of events that lead to a MAC diagnosis. My only symptoms were a bit of heaviness in my chest and getting more out of breath than usual when I would try to run. I had no coughing, congestion in lungs, fever or any of the other things I have read about on this blog. The sputum culture came back positive so that's what they are basing everything on. When you had the second opinion, did they do another sputum culture?